Paul,

   I have Acute Myelogenous Leukemia.  I am half way through
   the chemo therapy.  My days are numbered so I have to get rid
   of my toys.

   For anyone interested I have an RV-4 project to get rid of.
   Among other things.


   Please contact me at:


   E.L. Sandburg
   79 Country Lane
   Superior, MT 59872



   (406) 822- 3764
   eugenesandburg@hotmail.com

   Sorry to hear that Eugene.

   Paul Lamar

 Gene...

 I can sympathize with you...a few years ago, I asked Paul to stop
 my subscription (as well as stopping the CSA newsletter), and
 started getting my project ready to sell after I was diagnosed
 with chronic lymphocytic leukemia and was into my third month of
 chemo. It felt pretty hopeless.

 But, with the application of the new monoclonal antibodies
 coupled with the traditional chemo, I have been in remission now
 for over two years. 15 years ago, I would have probably been dead
 by now.

 So far, the monthly blood tests don't show any indication of the
 CLL developing again.  Unlike AML, my CLL is still one of the
 incurable cancers, and I can expect treatment again some day, but
 about 4 months after my 9 month treatment, I was feeling so much
 better that I asked Paul to restart the newsletter, and went back
 to work on the Long EZ. I've also restarted my CSA newsletter and
 currently have only to finish painting the Long EZ's fuselage,
 reinstall the engine and the instruments and go flying!

 I've met several AML patients at the University of Rochester
 Medical Center where I go for my treatment, and unlike the CLL
 patients I've met there (some who have died now) many of the AML
 patients have actually been cured...so hang in there, don't sell
 the RV yet... wait until your treatment is over, you may change
 your mind and wish you hadn't sold it.

 Harley Dixon
 Long EZ N28EZ
 Canandaigua, NY

 www.agelesswings.com/LONGEZ.HTM


Gene:
One of my software clients is the Weisenthal Cancer
Group in California (http://weisenthalcancer.com)
The Weisenthal Cancer Group's laboratory is one of a
few places in the country that does in vitro testing
of a patient's own cancer cells with cocktails of
different chemotherapy agents.

Google the founder's name "Larry Weisenthal" to
learn more than you'll ever want to know about
"assay directed chemotherapy"

Larry is (arguably) the world expert on these
methods, and naturally thinks that their laboratory
is the best at what they do.

At the very least, I suggest you call Larry at the
number on his web site and chat with him.

He will be very helpful and straight forward with you.
Tell Larry that "Robin told you to call him"

Larry's brother David, a pilot in years past, fought
cancer for years and later competed in the Iron Man
Triathalon to prove to all that he had licked the disease.

Robin B


Robin provides some good advice. Gene...but, as the Weisenthal
center web site states, be sure to check with your doctor first
before considering using them.  Your treatment may already
consist of a similar treatment regimen.  I know mine at the
Wilmot Center at the U of R did.

I was lucky enough to have been asked to attend a presentation of
the analysis of my bone marrow biopsy which determined which
chemo drugs (and monoclonal antibodies) I received.  The
treatment was based on the genetic deletions and the marker
proteins that my analysis showed. For example, the standard for
CLL at that time (2007) was fludarabine, but I was treated with
pentostatin and Campath (plus a few other drugs).

Many other major cancer centers are customizing the treatments
now as well.  The smaller, so-called "shopping mall cancer
treatment centers" that are springing up all over the country may
not be doing that. And unless they are affiliated with a major
center, may not be using the latest regimens.

If you are seeing only doctors at a local cancer center that is
not affiliated with a research facility, a medical teaching
university or a similar large cancer center, I would suggest that
you make arrangements to make the trip to at least one major
center for a second opinion to be sure that you are getting the
latest and the greatest treatment for your specific flavor of
leukemia.
I know patients that have traveled to Houston or the Mayo clinic
just for confirmation that their treatment is the right one.


Harley