Paul,

I have Acute Myelogenous Leukemia. I am half way through
the chemo therapy. My days are numbered so I have to get rid
of my toys.

For anyone interested I have an RV-4 project to get rid of.
Among other things.


Please contact me at:


E.L. Sandburg
79 Country Lane
Superior, MT 59872



(406) 822- 3764
eugenesandburg@hotmail.com

Sorry to hear that Eugene.

Paul Lamar

Gene...

I can sympathize with you...a few years ago, I asked Paul to stop
my subscription (as well as stopping the CSA newsletter), and
started getting my project ready to sell after I was diagnosed
with chronic lymphocytic leukemia and was into my third month of
chemo. It felt pretty hopeless.

But, with the application of the new monoclonal antibodies
coupled with the traditional chemo, I have been in remission now
for over two years. 15 years ago, I would have probably been dead
by now.

So far, the monthly blood tests don't show any indication of the
CLL developing again. Unlike AML, my CLL is still one of the
incurable cancers, and I can expect treatment again some day, but
about 4 months after my 9 month treatment, I was feeling so much
better that I asked Paul to restart the newsletter, and went back
to work on the Long EZ. I've also restarted my CSA newsletter and
currently have only to finish painting the Long EZ's fuselage,
reinstall the engine and the instruments and go flying!

I've met several AML patients at the University of Rochester
Medical Center where I go for my treatment, and unlike the CLL
patients I've met there (some who have died now) many of the AML
patients have actually been cured...so hang in there, don't sell
the RV yet... wait until your treatment is over, you may change
your mind and wish you hadn't sold it.

Harley Dixon
Long EZ N28EZ
Canandaigua, NY

www.agelesswings.com/LONGEZ.HTM


Gene:
One of my software clients is the Weisenthal Cancer
Group in California (http://weisenthalcancer.com)
The Weisenthal Cancer Group's laboratory is one of a
few places in the country that does in vitro testing
of a patient's own cancer cells with cocktails of
different chemotherapy agents.

Google the founder's name "Larry Weisenthal" to
learn more than you'll ever want to know about
"assay directed chemotherapy"

Larry is (arguably) the world expert on these
methods, and naturally thinks that their laboratory
is the best at what they do.

At the very least, I suggest you call Larry at the
number on his web site and chat with him.

He will be very helpful and straight forward with you.
Tell Larry that "Robin told you to call him"

Larry's brother David, a pilot in years past, fought
cancer for years and later competed in the Iron Man
Triathalon to prove to all that he had licked the disease.

Robin B

Robin provides some good advice. Gene...but, as the Weisenthal
center web site states, be sure to check with your doctor first
before considering using them. Your treatment may already
consist of a similar treatment regimen. I know mine at the
Wilmot Center at the U of R did.

I was lucky enough to have been asked to attend a presentation of
the analysis of my bone marrow biopsy which determined which
chemo drugs (and monoclonal antibodies) I received. The
treatment was based on the genetic deletions and the marker
proteins that my analysis showed. For example, the standard for
CLL at that time (2007) was fludarabine, but I was treated with
pentostatin and Campath (plus a few other drugs).

Many other major cancer centers are customizing the treatments
now as well. The smaller, so-called "shopping mall cancer
treatment centers" that are springing up all over the country may
not be doing that. And unless they are affiliated with a major
center, may not be using the latest regimens.

If you are seeing only doctors at a local cancer center that is
not affiliated with a research facility, a medical teaching
university or a similar large cancer center, I would suggest that
you make arrangements to make the trip to at least one major
center for a second opinion to be sure that you are getting the
latest and the greatest treatment for your specific flavor of
leukemia.
I know patients that have traveled to Houston or the Mayo clinic
just for confirmation that their treatment is the right one.


Harley

Anyone interested in natural ways please google AVE - which is
an extract of wheat. Testing of Ave along with conventional
treatment is showing very good results, and Ave also helps
minimize side effects. A second product , google "the one
minute cure" and read FAQ's .

I don't have any personal
knowledge of cancer cures but will be seeing my cousin about
metastasized lung cancer today.

Finally, ask your doc about a
little known and new procedure where they inject glucose first
to target the cancer cells (because they are energy "glucose"
hogs) and then inject a much lower dose of chemo.


Best wishes to all,
Dan F


I don't have any advice to give on cancer treatments, but
try to be optimistic and make some long term plans for the
future. Sure, your days are numbered, but so are all of ours..
No one knows what that number is. Hopefully, it's a big one.

Hang on to your project a while longer. Good luck, our good
thoughts are with you.

Brian Trubee

Robin B.,

Your advice is well taken, and I will look into it.


After many months of fighting the GP system, I managed to
break the barrier and got a biopsy at the St Patric Cancer
Center in Missoula, Mt.  I indicated to them that I wanted
to go to the Mayo Clinic at Rochester, Mn.  Before I left
the clinic that day, Thursday, they had me set up for an
appt. at the Mayo Clinic for the following Monday morning.


Because of my age, eighty Three, the Mayo clinic, put me
into a special chemo program.  Because of the screwups of
the local GP's and other age related problems.  Complicated
by a contaminated local blood transfusion.  I was a basket
case when I entered the Mayo Clinic.


From the large amount of attention I recieved, I don't
think they expected me to last out the week.
The man in thext room to mine did not. But lasted it I
did, and they released me to outpatient catagory exactly
one month later to St. Patris Cancer Center.  I have recieved
my second chemo now and have two to go.



Thanks again.



Gene